Panel E

Organizational Health Literacy: Operationalizing Healthy People 2030 Goals

Growing attention has been given to the role of literacy and equity in health and health care. Yet, the spotlight remains largely on individual skills and materials. There is insufficient focus on organizational health literacy and health equity as frameworks for assessing and operationalizing optimal health outcomes. Likewise, little work explicitly highlights families of young children with disabilities and complex needs, particularly high-risk infants. A systems-perspective is essential to pursuing equity. Parents of young children with complex needs embark on a lifelong process of systems navigation to advocate for environments that meet their children’s needs. Families, professionals, and institutions face unclear processes and responsibilities, high literacy demands, and siloed practices. Best practice suggests the use of multiple, systems-level frameworks combined with lived experience data as crucial to pursuing organizational health literacy. Healthy People 2030 metrics highlight an urgent need to strategize about the role of health literacy in meeting the next decade’s health goals. As such, the panel will discuss organizational health literacy in the context of other multi-level, systems frameworks and describe facilitators and barriers to assessing and implementing organizational health literacy components. Panelists will use experience in various high-risk pediatric settings to frame the discussion.